Tag Archives: Huntington’s awareness

Huntington’s Disease Awareness Fundraiser

An event to increase the awareness of Huntington’s Disease (HD) will take place this month at Firhill Stadium, the home of Partick Thistle F.C, in the Alan Rough Suite.

Huntington’s Disease is a condition described as “a neurodegenerative genetic disorder that affects muscle coordination and leads to cognitive decline and psychiatric problems. It typically becomes noticeable in mid-adult life.”

The event will take place on Friday 30th November 8pm – midnight, organised by Annie MacKenzie.

It is billed as “Rock Around The Christmas Tree For HD Awareness” and will feature some of the best up and coming musical artists from Scotland, including Sixth Avenue Traffic, The Cosmanauts, Honeybadger and Ded Rabbit. There is also a buffet and an auction to raise funds.

Annie MacKenzie explains prejudice against those with Huntington’s Disease due to misunderstandings can be very hurtful to sufferers.

She said: “Most sufferers stop going out due to being accused of being drunk which is very hurtful for them, our event’s are now giving them a space to feel part of their communities again, they all know we find a safe environment, friendly people and we are all together for HD awareness, that empowers people who suffer from HD to change their own attitude towards their ways of coping, helps their families feel less stressed and we all know music is a good healer for anyone who suffers from high levels of stress.”

Annie has previously organised many other fundraisers to support sufferers and families of sufferers of HD.

Commending those who help to create the event, she continued: “We always thank all the bands who play at our event over and over again for their kind free contribution not only has band members, but they guide us through the process of planning a live music event and of course our wonderful team of volunteers with who we all share one thing in common: we are all from HD families, we all know the impact HD has had on our lives and we all push to make huge changes so the next generation do not have the same amount of upset and stress as most of us have to cope with on a daily basis.

“There is also a CD called Carry On which is a compilation of 20 tracks that have all been donated (play-list to be released just before the 30/11/12) by 20 of the bands who have played at our past HD awareness live music event. The track Carry On was written by a Glasgow based band called The Coffins (who are also appearing at the fundraiser). The lead singer attended our last gig which we held at the Woodstock music club in Dunfermline, he asked me why the need to be HD aware and by the time I finished telling him it had such a huge impact on him that he went home and wrote the song.”

Tickets for the event can be purchased for £8.00 in advance  by calling or texting 07706080367  or at the venue on the night for £10.00.

For more information go to: http://www.liveforlifescotland.webs.com/